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Experiences with discussing preferences
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Discussing medical and non-medical issues
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Choices within ACP depend on the present situation
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ACP focused on medical and non-medical issues
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ACP also focused on the here and now
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ACP mostly focused on health related issues
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Additional ACP outcomes
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ACP stimulates to think about the future
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ACP provides peace
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ACP provides clarity
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ACP increases trust in the healthcare provider
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ACP increases contact with the healthcare provider
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ACP increases the knowledge about dementia
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ACP makes sure their wishes are known
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ACP was not confronting
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ACP had not been useful
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ACP was confronting
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ACP was stressful
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Making timely shared decisions
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Shared decision making
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ACP should be decided upon together
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Healthcare professional should also listen to family caregiver
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FC could co-decide during ACP
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FC discussed ACP with person with dementia
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FC makes ACP decisions if necessary
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FC felt equal to the GP during ACP
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Engaging PWD is difficult because cognitive decline
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PWD keep aloof during ACP
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Making decisions for PWD is sometimes difficult
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SDM did not take place
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Taking responsibility for ACP decisions is difficult
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FC doubts if person with dementia can co-decide
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PWD’s insight in their situation is limited
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ACP is not feasible because of cognition
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Proactive behaviour
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ACP has to be repeated twice a year
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ACP has to be repeated annually
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FC had not thought about the future
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Proactive behaviour stimulates ACP
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GP has to take the initiative
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FC does not take the initiative
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Regular contact is important for ACP
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Discuss ACP when problems arise
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Has not thought about the future
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Does not want to think about the future
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FC does not contact the GP herself for ACP
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